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This resource provides what every parent should know about HIPAA and children who are no longer minors, as well as information on the documents parents

Few programs focus on the long-term health care needs of adult survivors of childhood cancer. The majority of existing programs are in pediatric institutions, without

A mother blogs about the process of providing autonomy in healthcare to her daughter, because ready or not, the process begins at 12 years old.

Self-advocacy is an important part of the maturation process for childhood cancer survivors. But it doesn’t mean that parents and siblings aren’t involved, nor supportive.

Passport For Care (PFC) is an interactive internet resource developed for childhood cancer survivors. It provides patients and families accurate, timely and individualized healthcare information,

SurvivorLink securely stores crucial electronic healthcare records and documents like the Survivor’s Healthcare Plan (SHP), promoting lifelong health awareness and knowledge about long-term healthcare requirements.

The Smart Adult Living After Childhood Cancer (Smart ALACC) Care Plan is an individualized “survivorship care plan” based on your answers to a brief questionnaire.