Some childhood cancer survivors experience significant late effects that impact the capability to live independently. This overview helps provide basic information about guardianship for an
Adults with disabilities who may not be able to live independently often rely on parents. It is wise for aging parents to plan for the likelihood
Brothers or sisters are very important people in our lives. Accepting the potential, or reality, of becoming an eventual caregiver as a sibling can feel
As a young adult treated for cancer in childhood, your healthcare needs to transition to the adult care setting, with a primary healthcare provider who
The American Society of Clinical Oncology developed two forms that can help survivors keep track of important information to be easily shared with healthcare providers
Children with medical complexity have extensive needs for health services, experience functional limitations, and are high resource utilizers. This report describes the population of children
As children move from active treatment to general care, families need a record of treatment to pass along to other physicians. An individualized survivorship plan
This report is based on the guidelines that have been developed by the Children’s Oncology Group to facilitate comprehensive long-term follow-up of childhood, adolescent, and
This resource provides what every parent should know about HIPAA and children who are no longer minors, as well as information on the documents parents
Few programs focus on the long-term health care needs of adult survivors of childhood cancer. The majority of existing programs are in pediatric institutions, without
